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Living (Dealing) With Scoliosis

by on Jun.25, 2012, under Instructional, Medical, News, Recommendations, social commentary

To set appropriate expectations…  This is L.O.N.G.  So acquire your favorite beverage / snack / lounging attire, get comfortable and cover the kiddies’ eyes and ears, as it is also NOT G-Rated.

OK?

OK.

The reason this blog exists is to help others suffering with similar debilitating and painful spinal conditions.  Aside from Scoliosis, there are numerous other congenital or injury-related problems that can be so painful that the very idea of living one more day under these conditions is unthinkable.  I know.  I was there more than once.  If I can help one person make sense out of what’s happening to them, provide some support, useful suggestions, or just make them laugh – and realize they’re not alone in this – I’ve achieved my goal.

Please feel free to share this with anyone you think might benefit from it.

Index:

First Sign of Trouble
Osteoarthritis
Bad Habits
Physical Conditioning
First Sign of Real Trouble
Pain Management
Oxycontin
Constipation
Psychological Impact of Chronic Pain / Painkillers
A Partial List of painkillers
User, Abuser or Addict
Magic – Some Things That Actually Work
The Waiting Game
Running Out of Time
A Little Prep Work
What Else Can They Do to You?
Pain, Painkillers, Erectile Dysfunction and You

 

Warren's Twisted Spine

Aren’t you glad this isn’t you?

When I tell people I’m going in for surgery to correct a major scoliosis deformity the response is invariably “But you look so good!”

Well… Thanks for the compliment… (I guess) But that right there is part of the problem. For me. Diagnosed with scoliosis at the age of 12 or 13 by a Chiropractor in Crescent City, California, I really had no appreciation for the long-term issues that go along with this deformity. And as a result, I lived my life like there was no tomorrow and did pretty much anything and everything I wanted without regard to the effect on my twisted spine.  There is a definite up-side to this, such as: the one thing my tombstone will Not have on it is… A Bucket List.

First Sign of Trouble

As a roadie for The Grateful Dead at the age of 18, a shot of pain like I had never imagined,  sliced through the middle of my back.  Searing, blinding white-hot pain that showed no sign of abating any time soon.

WTF?

The first of many nexus points, that’s WTF…

Damn!  This was a whole new experience for me. You know how teenagers think they’re bullet-proof?  Well, I found out I wasn’t in a very educational collision with the side of an Econoline van at the age of 16. Perhaps this sounds familiar:

  • 16-year-old on a motorcycle.
  • No helmet.
  • No boots.
  • No gloves.
  • No sense.

Street-racing on a Honda 150 (really?  Yep).  Coming to an abrupt halt at 50mph is nothing if not educational. And painful. And 6 months on crutches is pretty informative as well…

But I digress…

A little glitch…  If you don’t see a numeric listing of the rest of the pages in this blog, a “More” button shows up at the end, after the Tags and the Comments.  Press this so you can see all the pages in this post.  Still working on figuring this weirdness out.

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The Big Day

by on Jun.25, 2012, under Instructional, News, Recommendations, social commentary

Segment 2 of this 3-stage blog picks up where Living (Dealing) With Scoliosis leaves off (read it for the history of my scoliosis) and is written to assist those living with scoliosis and similar spinal disorders only correctable via surgery.  It’s LONG.  Very L.O.N.G. and you should take this into account.  It covers my spine from the time I elected for surgery and the ensuing recovery that will take the next year or so.  I’m trying to be as complete as possible, while employing as much of my characteristic levity as seems prudent along the way.  I will use personal examples, solutions I’ve sound successful – and not so much – and recommendations I believe are worth trying.

Just to set reasonable expectations, I’ve had quite a few surgeries (7 to be precise) and possibly associated with this (or maybe from having been a Black Belt instructor for 10 years) I have a fairly high tolerance for pain.  Therefore you will see the following statement from time-to-time throughout the balance of this post “Your Mileage May Vary

I am NOT a medical professional.  Do NOT try anything based on what I’ve posted in here without assuming all risk yourself – and consulting your physician.

Got it?  Let’s get started…

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Scoliosis Surgery Recovery at Home

by on Jun.25, 2012, under Instructional, News, Projects, Recommendations, social commentary

Segment 3 of this blog picks up where The Big Day left off
And to reinforce what I’ve said before, I am NOT a medical professional of any kind.  Consult a doctor or at least a physical therapist before undertaking any suggestions found on this blog.  You take full responsibility for using any of this information.

We were originally led to expect a total of 14 to 18 days away from home, split up pretty evenly between Baylor Plano and the Baylor Rehab facility in Frisco.  So like the smart little squirrels we are, we plugged that information into our calendar, I produced little plastic bags of daily supplements to last that long and off we scurried to Baylor.

As early as ICU, we started hearing that Rehab was unlikely due to my rapid  recovery – which sounded pretty good.  On Friday, they were saying we’d be going home either Sunday or Monday and that would be our call.

So when Sunday came around and I was feeling pretty good, that seemed like a good time to say “Adios” to all our friends, nurses and doctors on the PCU and head for the Old Homestead.  And we did.  (insert “I’m an old cowhand… from the Rio Grande…” chorus here) We arrived home around 1400 hours  And then it was time to work on Logistics and get our Love Nest converted  (temporarily) into an Invalid Nest.

Fortunately we have near-Zero clutter, a single-story home (built that way on purpose) and   the right flow of energy to make it a really good place to recuperate.  Lots of open spaces define our living areas, and my wife has transformed both front and back yards into an Oasis.  I cannot think of a better place to Rehab.  And No.  We do not rent out rooms, ain’t gonna happen.  Don’t even think about it.

Index

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What Else Can They Do To You?

by on Jun.25, 2012, under Instructional, Medical, Recommendations, social commentary

Here’s a little piece of advice from someone who’s been there.

At one point in my life, back in the 80s, things were going wrong so fast and is such abundance, I made the egregious error of asking out loud “What else could possibly go wrong?”

Don’t ever do that.

My answer came so fast it made me dizzy – and my family and I wound up living in a house that had been uninhabited for several years, 45 minutes from civilization, with the only source of heat being a Franklin wood-burning stove – upstairs.  Ever try to push heat DOWNstairs?  And a good part of every week was spent foraging for wood to keep my family warm.

So just don’t ask, OK?

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Pain, Painkillers, Erectile Dysfunction and You

by on Jun.25, 2012, under Instructional, Medical, Recommendations, social commentary

In the Big Blog that started all this blather, there’s a section on pain medications and their side-effects.  This page is the logical progression from that section.  Once again I am not a medical professional.  What I write is from personal experience, conversations with my peers and over 60 years on this planet observing the Human Condition.

When it comes to Erectile Dysfunction, popularly called ED so you won’t feel so bad when you have it  [Right…] most men never thought this would happen to them.  The ability to  achieve and keep a big fat erection is considered part of being a MAN.  If you can’t, somehow you’re not as much a Man as you should be.  Call it what you want, that’s the way we’re wired.  No man want’s to hear from his mate: “That’s OK baby, it happens to everybody sometimes.”

Seriously.

While some women seem to think men are just sex machines that will start snorting and pawing the earth like a bull in heat at the slightest come-on from a semi-attractive woman – and bang ’em like a cheap drum all night long at the drop of a hat – they are a little off the mark.
Most men would also like to think this is true.
And in our younger days, for some of us it was true.
However…  Even under the best of conditions, sex for men is as much psychological as it is physical – perhaps even more-so.

It’s not as much fun for either partner if it’s over almost as soon as it started.  And most men will freely (though not happily) admit they are not up to the “ideal” 10-15 minutes of rutting like pigs in heat before both partners lie panting, glowing and sticking to the sheets.  If most men can make it to 3 minutes it’s a real accomplishment, requiring mentally ticking off baseball scores from the 50s in reverse order, designing a spreadsheet or building a honey-do list in their heads – all while trying to appear lusty, virile and focussed – and saying just the right thing at the right time.

This is a lot of pressure.  Both mental and physical.  And when your plumbing starts to not do it’s job like it used to, you can’t have any part of the equation stop operating at peak efficiency or there’s going to be a failure somewhere.

And then somebody’s left unfulfilled.

Sexpectations

Sexpectations – Copyright 2012 VividPixelz.net

Now let’s just complicate all this with P.A.I.N. shall we?

When you’re in chronic pain, especially low back or leg pain, think about the impact on good old-fashioned sex.  Even more-so with some kinky sex that requires better balance…  Now how easy is it to achieve and keep that Manly erection do you suppose?  I’ll tell you one thing.  I sure didn’t get any better.  Now you’re in Pain while trying to maintain an erection and do all those other things that make for a happy, satisfied mate – and self.  And the pressure mounts.

For many of us, the only solution to our Pain problem is Painkillers.  And like with any other medication, most high-powered prescription painkillers come bundled with side-effects.  And several of these side-effects have both direct and subtle effects on the ability to have and enjoy sex.  The big list of side-effects is right here in the Big Blog, but let’s enumerate some specific physiological side-effects of painkillers here:

  • Sexual dysfunction
  • Constipation
  • Swollen prostate
  • Incomplete urination

Let’s start at the top:  Sexual Dysfunction:  The more painkillers you have coursing through your bloodstream, the more it depresses not only your libido, but your respiration, blood flow and a lot of other fairly critical components.  If you’re heavily medicated enough, even if you wanted to actually have sex, getting it to happen is not only complicated, but at some point, just not worth the planning, timing and effort.  Especially if there’s a better-than-average chance at it not being”successful”.

There are plenty of medications for ED on the market.  None of them are covered by your medical insurance and they’re all pretty expensive.  Do they work?  Depends on the exact nature of your problem.  Viagra, Cialis and their kin, work by increasing the blood flow to your genital area.  In addition, it increases the blood flow in most other places as well, making you look / feel flushed and sometimes resulting in headaches.  All of these have the potential to solve the “plumbing” issue by just dramatically increasing the blood flow – and voila!  An Erection.  A BIG Manly erection!
Swell <rimshot>
Now what do we do with this thing?  Well hopefully you know the answer to that question or you shouldn’t have taken the little blue (or orange) pill in the first place.  The result lasts for a few hours and then things return to normal.

However…  If your receptors are soaked in narcotics to the point that you’re falling asleep at dinner, you may still have problems even ED medications can’t solve.  Like now you have this big fat erection and it just won’t last.  Or it does last but again – there’s no Big Finish.  Dammit!  All that planning, work (healthy complexion) and no Big Finish.  Now if you just want some cardio exercise and a mighty sweaty and (hopefully) satisfied mate, go for it!  But you could just buy her some chocolate and get on the exercise bike too…

Constipation:   Just consider that when it feels like you have a cinderblock in your belly, you’re not likely to feel all that sexy.  If you’re physically uncomfortable, sex isn’t going to be very high on your priority list.  It can be downright painful and a complicated juggling act to remain regular while adjusting your pain meds as your symptoms change.  This is something you really want to get under control for every possible good reason and keep it that way.  Start with lots of water and start adding stool softeners, fiber capsules, Magnesium, etc., until you have a balance.  It’s well worth it.

Swollen Prostate:  The Prostate is a very important little organ.  Several medications can cause it to become swollen (just like prostate cancer can).  When this happens, urination and sexual function are both adversely affected.  There are 3 components that make up semen and the prostate contributes one of them.  The prostate is also partially responsible for the pressure with which that sticky white stuff comes squirting out.  More pressure = more fun for everyone, especially if you’re in a contest for distance…  In addition, the urethra passes right through the prostate.  So when it’s swollen, none of these functions work at full potential.  Some, if not all, can barely function at all.

Incomplete and frequent urination, dribbling and general unsatisfactory emptying of the bladder all go along with an enlarged prostate.
(It used to sound like someone was running a garden hose into the toilet when you were in there and now it’s a lot of dribbling and splattering and you need a paperback to amuse yourself while waiting to finish…)

But wait – there’s more!
Difficulty in achieving / maintaining an erection
Pain in the back, thighs, hips…

So if / when you have an enlarged / swollen prostate, you’re going to want to fix this pronto, aren’t you?  Well…  Not so fast there, buddy.  Sometimes the cure is worse than the original problem.  There are some products on the market, including Flomax to reduce an enlarged prostate and solve these problems.  And some of them work for some people.  And then there are the side effects
Like you’re able to get and keep an erection (at least better than before) but now you put in “a full day’s work” and no Big Finish if you get my drift.  Now wait just a darned minit here!  All this work for no Big Finish?  WTF?  So now at least One of you is (potentially) happy and the other one is just exhausted.
Not exactly the desired effect, but not an uncommon outcome <rimshot> in many cases.
It’s just frequently the other way around…

Something to consider.  And this doesn’t happen to everyone so once again, Your Mileage May Vary.

Telling both men and women that this is “normal” under these conditions does not always do a lot to fix the self-esteem issues that go along with what is popularly called “ED” for Erectile Dysfunction.  Something that, in this case, is frequently caused by the very painkillers needed just to get through the day – and complicated further by the medications meant to fix the side-effects of these painkillers.

So what’s the answer?

First and foremost, as a couple you both need to understand both sides of the equation.  You need to sit down and discuss your needs, expectations and concerns.  Men can have a particularly difficult time of this.  When you’re so busy worrying about the outcome of trying to successfully have sex, that you cannot get it up, keep it up, and / or finish up, you need to convey this to your mate.

Secondly you need to talk with your doctor and rule out any other physical problems that could be causing your particular case of ED.  Prostate cancer is something most men will face if they live long enough, I’m told.  Certainly a consideration, it’s not part of this article, so get yourself checked out by your doctor to find out what’s going on before you start trying ED medications.

Third and most importantly, you need to work on this together.  And can you think of a any project that is more fun to pursue?  If I had to pick any one thing I was going to practice until I mastered it, it wouldn’t be my guitar.  Knowwhattamean?

Just because you now have a problem doesn’t mean all the fun is gone from your relationship – and it certainly doesn’t mean this is permanent.  Maybe you need to get creative.  Perhaps it’s time to sit down and figure out some options, boundaries and things to experiment with.  Sometimes a change of pace makes a big difference.   There are some things that get better with practice and sex is definitely one of them.  It’s easy to fall into  a rut in your sex life and it’s always the same old thing.  Not bad, but not fireworks either.  So what happened?  Talk it out and make it a couples project.  Sounds like fun to me.

 

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Winston – In His Own Words

by on Sep.13, 2011, under Frisco, Projects, social commentary

(This story is copyrighted and planned for a future children’s book.  We are looking for an illustrator to collaborate with.  Contact us if you are interested.  Meanwhile, don’t you dare infringe on Winston’s rights or your anus will burst into flame right before your own hand mysteriously reaches into your mouth and jerks you inside out.  … seriously…)

Winston, In His Own Words

Hi. My name is Winston. I’m a Mockingbird and this is how I wound up here…

It’s not easy growing up. Initially, your mom takes care of everything and then one day she boots you out of the nest and then everything changes.

And one day that’s exactly what happened. Mom thinks it’s time I learn to fly and gives me the heave-ho. I tumble unceremoniously to terra firma (I know… big words for a little bird, but mom is big on education) and, dazed by the fall, scurry aimlessly in every direction, flapping my little useless wings, looking for shelter.

I spot this big black blob with some room underneath, plenty big enough for me and dart inside.

Whew! That’s a lot better. Out in the open I’m pretty vulnerable, even though mom says she’s looking out for me (easy for her to say – she can FLY).
So I’m just hanging out in the shade of this big blob (mom says it’s a Smart Car – doesn’t seem very smart to me – it just sits there – doesn’t even flinch when I run under it) when big feet come walking up to me. Then I hear a lot of noises I can’t make sense of – and this Smart whatever-it-is starts to rumble and shake. This is scary enough, but then it LEAVES.

And I’m out in the Open again!

Geez. Now what do I do?

I’m trying to figure out my options, which is really difficult with mom flapping all around the roof and yelling at me to “Run, Winston, Run!” when some even bigger feet come up really CLOSE to me and a BIG head comes even closer. This Giant, seems really interested in me. Not particularly menacing, but mom is yelling even louder that it’s dangerous and I need to Run!
Then the Giant leaves. Whew! That was close.

Before I can figure out which way to run, the Giant is back.
Drat!
And it’s got some kind of machine or something pointed right at me. It keeps clicking and the giant peeks around it every now and then, and clicks the machine some more. Meanwhile mom is really freaking out. I can’t even think with all this racket going on, so I just stare menacingly at this big Giant, hoping it will go away.

And it does. Seems it’s lost interest in me. Or it’s going to go get a net and have me for dinner! Either way, I’m out in the open and mom is about to have a stroke.

So I run. Mom is flapping and hollering and shooing me across the street and into the park. Then across another street and into a yard, where I find some nice big bushes to hide in. And then mom takes a break from shrieking at me.

And I can catch my breath.

Wow.

It seems the Giant was not so bad after all. It came back out to look for me again and saw me dart for cover at the last minute. It didn’t come after me and seemed kind of protective in a way.

So mom and I set up housekeeping in the Giant’s yard. I found lots of good bugs to eat on the Giant’s windowsill and he’d talk to me while I foraged for breakfast. Summer was really HOT, but at least we had some rain. Then it started to get cold. Mom said we needed to fly south.

We spent the winter in Mexico, which was pretty cool – and came back to find the Giant still there. I sing for him and he talks to me every time I come by. I’ve hopped into his workshop a few times. It’s a scary place, but the Giant is always friendly and tells me I’m famous. I’m not sure what that means, but it sounds like a good thing.

I think he loves me.

Winston the Baby Mockingbird

Winston in his own words

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